Jacqui's Halloween costume
Hannah and Jacqui and their new Girl Scout troop - just after making their promise (being invested) into the Girl Scouts of AmericaWe are a family who caught the travel bug early..... and now we often have wonderlust dreams that take us all over the globe. We LOVE exploring new places, discovering new food and culture, meeting interesting people and living like locals, for a short time at least...... We love where we live, but we also love exploring the world as well. Please join us on our journey of discovery.....
Jacqui's Halloween costume
Hannah and Jacqui and their new Girl Scout troop - just after making their promise (being invested) into the Girl Scouts of America
This is our new weekly medicine routine - maybe for the next 18 months
Nikki is continuing the treatment for Lyme Disease (LD) that she started in January, and has had some slow improvement (very slow - it is a bit of a long hard slog). We are hoping that will continue with her now seeing one of the world’s experts in Lyme Disease in Hyde Park
During her consultation in September with the LD specialist, he was very concerned about Hannah, Jacqui and Steve possibly also having acquired Lyme Disease, so they had the testing. They all came back positive, and have all been diagnosed as having Lyme Disease, and are starting similar treatment to Nikki. Hannah & Jacqui got it from Nikki transplacentally, and Steve got it sometime during the 20 years they’ve been married.
It explains Jacqui & Steve’s strange health problems over the past few years, and we have suspected that Hannah has had Lyme Disease for a while now, as she has been getting much sicker (almost as sick as Nikki, with many of the same symptoms making our trip in Europe very hard for her). We are hopeful that now we have a diagnosis and we start
treatment for everyone, that we will begin to get better, and possibly even recover completely (there isn’t a cure for Lyme Disease, you always live with it, you can keep it under control with antibiotics, supplements and herbs).
We just want to stress that Lyme Disease isn’t normally contagious, except from a mother to a baby in the womb, and sometimes sexually transmitted, so there is no chance that our friends and family can get it from us.
So the summary is that Jacqui & Steve have Lyme Disease mildly, and Hannah & Nikki have it severely. The treatment will be large doses of antibiotics, supplements and herbs, as well as injections for Hannah. We don’t know how long the treatment will last, but a few months for Steve & Jacqui (maybe) and a minimum of 18 months for Nikki & Hannah (& maybe much
longer).
We will post here soon about our Halloween experience, and our upcoming trip to







This is how great the US TV is at the moment (Big Bang Theory starts this week). We got the jigsaw puzzle at the Louvre.
MOVING TO ANNAPOLIS
We have been pretty quiet on the blog and emails since we arrived in the
We really like where we are living – it is in a community of 10 apartment blocks in a landscaped area (complete with BBQ and gazebo). We have half of the bottom floor for our apartment (3 bedrooms). Just outside our front door is the children’s playground for the community (and basketball hoop). Many of the families have young children who play there, so the parents hang out a fair bit on our front door step. Even though Hannah and Jacqui aren’t playing with the young children on the playground, Nikki and Steve have been going out and sitting with the neighbors, who are all very friendly. Most of the children are much younger than Jacqui and Hannah (there are two other teenagers in the community) and so the girls are very popular for babysitting (especially when Navy are playing a home football game).










Welcome to summer in England – Greenbelt was COLD
We have had a wonderful week here in
We visited Harrods and were AMAZED at all the things you could buy – including not only bullet proof vests, but bullet proof jackets and jumpers. We also asked in their bike department if they sold unicycles – the reply was “yes certainly, we don’t have any on the floor, but if you tell us what you want, we can order it in for you”. We really liked the food hall, the toy department and the pet department.
We all enjoyed going to the
The
One day Jacqui and Steve went on the London Eye (a very nice view) and to the Greenwich observatory and took some photo’s on the prime meridian, whilst Hannah and Nikki went to a local council so that Hannah could interview the local Young Carer Youth Worker about how they look after carers (and specifically young carers) in the UK, for her Queen’s Guide report.
One lovely Saturday Steve and Jacqui went to The Oval to watch
Another day when Hannah and Nikki weren’t 100%, Stephen and Jacqui went on a tour of Lords. It was AWESOME – they saw the Long Room, the dressing rooms, the honour boards (in the away dressing rooms), and the media centre which is like something from an alien spaceship, as well as the actual Ashes themselves in the Lord’s museum.
That night Hannah and Nikki went to see Romeo and Juliet at the Globe Theatre, which they LOVED. The disabled lift to get them to their seats was broken, so they had to go up in the theatre lift and be taken on a behind the scenes route, which was very exciting. The performance was amazing (we both cried at the end) – it was very different from the Bell Shakespeare Theatre version we saw a few years ago. It was the last performance of the season and so on our way out of the theatre we got to share in some of performers sadness (and joy) as we went through the change rooms out to the foyer.
We also visited the British Science museum and saw a cracking exhibition on Wallace and Grommit, as well as seeing an amazing 3-D printer in action.
We visited another World Centre for Guiding, at Pax Lodge. It was very nice, and we enjoyed the tour and meeting some of the workers there, but after Our Chalet it just didn’t feel as special (mainly because we were staying at Our Chalet and just visiting Pax Lodge for the day). We also visited the Guide Shop twice, to buy some UK Guiding resources that we will use when we get back to
One last highlight was catching up with our old friend Grant and his partner Martin. We were lucky enough to be able to get together with them twice whilst we were here – Grant really hasn’t changed at all since we saw him last (4 ½ years ago), and we had a great time catching up with them both.
Some statistics for you :
Number of kilometers driven – 4577km
Number of times we filled up with diesel – 8 times (giving us 763km to a tank – in
Cheapest country we visited -
Most expensive country we visited –
Most friendly country we visited -
Number of pills Nikki’s taken on the trip – 2,000
Number of herbal drops Nikki’s taken on the trip – 6,000
Number of photo’s we’ve taken – 3,309
Number of places we’ve stayed – 18 (which is a lot, but considering we are away for 60 days, it’s not too bad)
Place where we met most Aussies –
Place where we felt most different from the local people –
Best disabled access – The Louvre in
Worst disabled access – London Underground and Paris Metro
Best Meal –
Worst Meal -
Shortest stay in one place – 1 day (
Longest stay in one place – 11 days
Number of times we’ve missed people from home – too many to count
BERNKASTEL-KUES
We have really enjoyed
Between Bernkastel-Kues and Cologne we visited the most amazing castle - Berg Eltz. It is almost a thousand years old, and has a lot of the original furniture, tapestries and weapons from the middle ages. The castle has been inhabited by the same family for 33 generations, and there are still members of the family living in the castle. Steve, Jacqui and Hannah went on an amazing tour of the castle, whilst Nikki sat and sketched (there were too many stairs).
COLOGNE
BOTTROP
We went to
We now have two nights in Mainz, in our favourite hotel in Europe (the very disabled friendly Hotel Inndependence), eating gelato, going to the local swimming pool, and packing up to go to London (yes, yet more packing).
We had a weekend in
On the Monday we caught a beautiful train trip from
Overall we LOVED
We finally caught a boat to
p.s. thanks to Nikki's brother Steve for the internet cafe suggestions.

- visiting the Louvre three times (we could have gone back ten more times after that). It was especially good at night, when there were a
- We took a day trip out to Chartres Cathedral – Nikki was very excited to be able to walk the Labyrinth (it is only available on Fridays). There were lots of other people walking the labyrinth, but it didn’t feel crowded. Nikki found the experience a very spiritual one, and it was worth the pain she was in afterwards to be able to walk the whole thing without her wheelchair. While Nikki was walking the labyrinth, Steve, Jacqui and Hannah enjoyed exploring the church, looking at the stained glass windows and the statues depicting scenes from Mary’s life (the Cathedral is actually called Notre Dame, meaning Holy Mother). We were very lucky to find a wonderful restaurant for lunch and enjoyed a meal to help us forget (to some extent) the terrible dinner we’d had a few days before.
- On Saturday Nikki and Hannah rested whilst Jacqui and Steve went up the 284 steps to the top of the Arch de Triomphe – what a stunning view. After they came home that day we had a lazy lunch at the Creperie at the Pompodou Centre (the building that is inside out).That evening we took a sunset cruise on the Seine (which was beautiful), followed by a trip up the terrifying
- On Sunday we were excited to be right on the barriers to watch the Tour de France fly by (in 15 seconds). We got a great view of team Astana leading the peleton, complete with Lance Armstrong and Alberto Contador (who won). We were on the banks of the
- On our last morning as we were leaving Paris we visited the Orangerie museum, which has the most amazing series of Water Lily paintings by Monet – he painted them whilst almost blind with cataracts so they are huge, bright and full of feeling. We loved them, and enjoyed seeing a group of student artists sitting and sketching (surprisingly this is something we haven’t seen up to now in
- Our other highlight was discovering that while Paris itself is particularly disabled un-friendly (especially the public transport), once you get to where you are going, most wheelchair users get in for free, as does their carer. Since children under the age of 16 get in for free as well, this made many things free for the four of us in
The highlight of
Flamboree
The next day we met Hannah & Jacqui’s Belgian Girl Guide buddy at the airport in
Hannah and Jacqui headed off to Flamboree with the other Guides on the 29th of July. We had a quick email from them, but don’t expect to hear anything else until we see them again on the 8th of August. Having said that, the Flamboree website has a daily blog, website, newspaper and photos for us to keep up to date with what they were doing. We found a photo that the girls were in, and were very excited to see that the inflatable kangaroo had been getting a good workout.
Nikki and Steve have headed to
Nikki and Steve head off to
p.s. we have just been looking at the Flamboree website and seen both Jacqui and Hannah on Belgian TV and on the Flamboree Video's (it seems that carrying an inflatable Kangaroo is a good way to get yourself noticed). You can view the video's here http://vimeo.com/5840188 (no 3 is the news, and no 5 is the opening ceremony - the girls are both at the beginning).