Our (not so happy) news

This is our new weekly medicine routine - maybe for the next 18 months

Normally we post here about all the fun exciting things we’ve been up to and spare you the boring or not so pleasant things. We will get back to the fun and exciting again after this post, but thought this was a good way to let everyone know what was going on for us…..

Nikki is continuing the treatment for Lyme Disease (LD) that she started in January, and has had some slow improvement (very slow - it is a bit of a long hard slog). We are hoping that will continue with her now seeing one of the world’s experts in Lyme Disease in Hyde Park New York.

During her consultation in September with the LD specialist, he was very concerned about Hannah, Jacqui and Steve possibly also having acquired Lyme Disease, so they had the testing. They all came back positive, and have all been diagnosed as having Lyme Disease, and are starting similar treatment to Nikki. Hannah & Jacqui got it from Nikki transplacentally, and Steve got it sometime during the 20 years they’ve been married.

It explains Jacqui & Steve’s strange health problems over the past few years, and we have suspected that Hannah has had Lyme Disease for a while now, as she has been getting much sicker (almost as sick as Nikki, with many of the same symptoms making our trip in Europe very hard for her). We are hopeful that now we have a diagnosis and we start
treatment for everyone, that we will begin to get better, and possibly even recover completely (there isn’t a cure for Lyme Disease, you always live with it, you can keep it under control with antibiotics, supplements and herbs).

We just want to stress that Lyme Disease isn’t normally contagious, except from a mother to a baby in the womb, and sometimes sexually transmitted, so there is no chance that our friends and family can get it from us.

So the summary is that Jacqui & Steve have Lyme Disease mildly, and Hannah & Nikki have it severely. The treatment will be large doses of antibiotics, supplements and herbs, as well as injections for Hannah. We don’t know how long the treatment will last, but a few months for Steve & Jacqui (maybe) and a minimum of 18 months for Nikki & Hannah (& maybe much
longer).

We will post here soon about our Halloween experience, and our upcoming trip to Florida (where we will be watching a Space Shuttle launch (with the family of one of the astronaut’s being blasted off into space), catching up with old friends and going to Walt Disney World). We are missing all our family and friends, and think of you often, & hope you are all well back home, and enjoying the warmer weather.